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Sarah
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A very special
THANK YOU to Wyatt and Michelle who are the proud parents of Joe
(RBE) for donating the www.child-amputee.net domain and web space.
Copyright © 2004
International Child Amputee Network
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what
I call my nubbins. Well they would have been my hand and fingers if it had grown
properly. Not only that but I was also born with a skin tag on my lower lumbar
spine which they thought nothing of because an x-ray was taken right after birth
in 1979 and the Doctor thought it was nothing to worry about. I was always so
self-conscious
about the large skin tag that at age 20 I wanted it removed. So I went to a
Doctor and he wanted to just cut it off in the office and I requested a MRI to
be sure. I had the MRI and saw a neurologist and he told me I had I had a type
of spina bifida oculta. I had surgery in 2000 to correct my spinal cord and
spinal column. I never had problems and thank god never will with my legs like
90% have. So I guess you can call me lucky.
Madison
Genetic center to have some tests done They were looking for a possible gene
that was in my family that might have caused my short arm and my spina bifida.
In my family my maternal grandma's cousin was born with no legs and my mothers
cousin was born with severe spina bifida. Well back in 1979 testing was not the
greatest yet so they didn't find much. I guess that is a mystery I will always
wonder. While attending Madison they fit me
with my first prosthesis. I have had every kind possible and I'm full of advice
on each one. Some examples the plain hook with moving elbow, myoelectric,
passive light weight (both put on by use of a sock) and the latest pin and
socket passive. (And many more)
